Ok so the title isn't exactly the truth, but it grabbed your attention, am I right?
Yesterday we went to Karmanos for Tim's infusion. On Friday last week he had a CT scan. So we were met in the hallway by one of Dr. Heath's nurses. She told us Tim needed to go to the 5th floor for his labs not the lab on the 1st floor, as he was previously told. Then we were to go back downstairs for the appt with Dr. Heath. After a little chit chat she told us the results of his CT scan. Yes, you guessed it, his lesions are growing. They are not growing fast and did not meet the 20% growth that is protocol for being kicked out of the drug trial. However, it was about a 14% overall growth. So Tim decided to stop this drug trial and wait for the next one. The positive thing is that Tim is fairly healthy and that Karmanos has 70+ drug trials. So it shouldn't be long before they find another one for him. The other positive thing is that he does not have any new lesions. Mentally this always takes us a day or two to get through. I think it's just a loss of anything there is a grieving process. I told him not to get down about it, but who cried on the way home yesterday...yeah me. So that's where we're at right now. I have also heard about unemployment being extended again. It's kind of confusing to decipher if I will get it or not. I highly doubt it, it would be nice this time of year to have that, as things are really tough.
Things will get better I know they will!
4 comments:
Hugs to you and Tim, I really hope they get him into another trial, and quickly. Just remember that you have a friend out here in the cyber world rooting for you both. I'll keep my fingers crossed that you'll also be seeing an unemployment check sometime soon. Keep your head up!
Hey Carm. {{{{HUGS}}}} I'm so sorry to hear that this drug trial wasn't as effective as hoped. You are both troopers for going through all of this, and PTL there are more options, other trials.
It is perfectly normal to be upset. If it weren't for our emotions, we'd just be fleshy little robots, and where's the fun in that? I know God is watching over both of you, and I know He has a plan. The tough part is just putting all your faith in Him, and waiting. Everything is in His time and for His purpose, and we just have to wait for Him. But that doesn't mean we don't get sad and discouraged sometimes. I hope it helps to know that all your friends are here for you to lean on and vent to.
Don't forget to take care of yourself, too.
{{{{HUGS}}}}
Oh Kiddo, I'm so sorry to hear the news. I do know somewhat of what you are going through and feeling because Jay and I go through that a lot with different new drugs for his MS. But you have to hang on to the hope only and let all the disappointment go. Things happen for a reason, and you have to believe in that. Who knows, maybe this happened to get him into something else that is coming that will help. Just always hang on to hope! I'm thinking good thoughts about you guys! Best, Curt
OH sweetie, hang in there ..... you have my best prayers and so many healing thoughts and vibes behind you and TIm. I can only hope and pray that means something better is waiting out there for him and the next trial will be better. Stay strong, and hang in there! Hugs all around!!
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